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Check out our upcoming events, see the latest research updates, or support a personal fundraiser for a member of the Usher Syndrome community!

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A mockup of the Artechouse NYC space featuring black and white portraits from the Shine a Light on Usher Syndrome exhibit on the walls and floor

upcoming event

See Us, Hear Us: An Immersive Exhibition

Thursday, October 23, 2025

Join the Usher Syndrome Society at Artechouse NYC on October 23rd for an immersive gallery experience that brings over a decade of storytelling to life. 

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Upcoming Event

Times Square Takeover for Usher Syndrome Awareness Day

Saturday, September 20, 2025

In honor of Usher Syndrome Awareness Day on September 20th, 2025, The Usher Syndrome Society will be taking over multiple Times Square billboards in the heart of NYC for a second time with the Every Second Counts Campaign.

See Event details
Two billboards in Times square displaying the Every Second Counts campaign by the Usher Syndrome Society during the 2024 Takeover
The interior of the Urban Wild venue in Charlestown featuring a state, string lights, and lots of tables

Upcoming Event

USH X URBAN WILD

Tuesday, December 2, 2025

SAVE THE DATE! This year’s Annual Sight, Sound, & Strength Boston Fundraiser will take place at Urban Wild on Tuesday, December 2nd, 2025. Urban Wild is a restaurant, beer garden, live music venue, bowling alley, and outdoor game space located in Charlestown, MA.

MORE DETAILS COMING SOON!

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A photo of a group of people at our Sight Sound Strength. Everyone is standing with their hands on top of one another in the center.

Contact Us

Join our community! We welcome you to reach out

To set up a personal fundraising page, volunteer, or host an event please contact us at:

781.444.5766

[email protected]