Past Events • Summer 2018
Strike out USH
In partnership with the Usher Syndrome Society, Rebecca Alexander was selected to throw the ceremonial first pitch at major league baseball games around the country. This campaign lasted throughout the summer of 2018, with Rebecca and the Usher Syndrome Society throwing the first pitch for the Red Sox, Yankees, Chicago Cubs, and Tampa Bay Rays, each at their respective home fields.
With the goal of raising awareness and research funds for Usher Syndrome, the #StrikeOutUSH campaign included a creative and captivating PSA that featured portraits from the Shine a Light on Usher Syndrome Exhibit, which played at the start of each game.





More Events
Orangetheory Fitness X USH
Past Events • June 3, 2023Orangetheory Fitness X USH On June 3, 2023, Orangetheory Fitness studios around the country came together to educate the public and raise research funds for the rare disease Usher syndrome, the leading genetic cause of combined deafness and...
This is USH: An Evening of Conversation
Past Events • December 12, 2022This is USH: An Evening of ConversationOn December 12th, 2022, The Usher Syndrome Society hosted the first This is USH event, where we heard from Steven McCoy and Rebecca Alexander about the unique experience of living with Usher...
Sight, Sound, Strength PKL
Past Events • November 30, 2022Sight, Sound, Strength PKLOn November 30, 2022 the Usher Syndrome Society hosted our annual experiential Sight, Sound, and Strength fundraiser at PKL in Boston. PKL is one of Boston's hottest new venues, with 4 premium indoor...