Past Events • November 28, 2023
USH X SPIN 2023
Our USH X Spin Boston Ping Pong fundraiser was an enormous success. The incredible support we received from everyone was overwhelming. Thanks to you, we were able to raise over $140,000 which will go directly to our Translational Research Grants for 2024. Together we are changing the future of Usher syndrome.
This event would not have been possible without the generous support of our sponsors. We truly appreciate you and the difference you are helping us make in finding treatments and a cure for Usher syndrome.
Click here to learn more about our Sight, Sound, & Strength Events
More Events
2024 Shine a Light Portrait Sign-Ups
2024 connections conference portrait sign upIt's time to share your storyWhat is the shine a light on usher syndrome exhibit?Shine a Light on Usher Syndrome is one of the Usher Syndrome Society's primary awareness initiatives designed to share the faces and stories of...
Lobbying for USH
Lobby-ing for ushAn Awareness Campaign for Usher Syndrome in Lobbies Around BostonLobby-ing for USH is an opportunity to showcase our powerful Shine A Light on Usher Syndrome Photojournalism Exhibit in prominent building lobbies around the city of Boston (and...
Orangetheory Fitness X USH
Past Events • June 3, 2023Orangetheory Fitness X USH On June 3, 2023, Orangetheory Fitness studios around the country came together to educate the public and raise research funds for the rare disease Usher syndrome, the leading genetic cause of combined deafness and...