Past Events • November 28, 2023
USH X SPIN 2023
Our USH X Spin Boston Ping Pong fundraiser was an enormous success. The incredible support we received from everyone was overwhelming. Thanks to you, we were able to raise over $140,000 which will go directly to our Translational Research Grants for 2024. Together we are changing the future of Usher syndrome.








This event would not have been possible without the generous support of our sponsors. We truly appreciate you and the difference you are helping us make in finding treatments and a cure for Usher syndrome.

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More Events
This is USH: An Evening of Conversation
Past Events • December 12, 2022This is USH: An Evening of ConversationOn December 12th, 2022, The Usher Syndrome Society hosted the first This is USH event, where we heard from Steven McCoy and Rebecca Alexander about the unique experience of living with Usher...
Sight, Sound, Strength PKL
Past Events • November 30, 2022Sight, Sound, Strength PKLOn November 30, 2022 the Usher Syndrome Society hosted our annual experiential Sight, Sound, and Strength fundraiser at PKL in Boston. PKL is one of Boston's hottest new venues, with 4 premium indoor...
Sight, Sound, Strength: Harpoon Brewery
Past Events • November 19, 2019Sight, Sound, Strength: Harpoon BreweryOn November 19, 2019 the Usher Syndrome Society hosted our annual experiential fundraiser event at Harpoon Brewery in Boston, MA to bring awareness and funding to support Usher syndrome. The...