personal fundraiser

Leo Swider

Meet Leo

Leo is a vibrant and joyful two-year-old who was born with Usher syndrome, which affects his hearing and also causes progressive vision loss. Despite the challenges he faces, Leo’s enthusiasm for life is contagious, and his love for learning shines through in everything he does. Whether he’s exploring his surroundings or soaking up new experiences, Leo approaches each moment with curiosity and determination. He is surrounded by an incredible support system of family, friends, and specialists who are committed to helping him thrive. Together, they ensure that Leo has every opportunity to navigate his journey with confidence and joy.

How can you help?

Donate below to help support PUSH – the Pipeline for Usher Syndrome Research – and the Usher Syndrome Society’s Translational Research Grants

Your contribution is a powerful way to make a meaningful impact on the lives of individuals like Leo and families affected by Usher syndrome. Together, we bring hope, progress, and the possibility of a brighter future for everyone affected by this condition.